* SMA (Spinal Muscular Atrophy) is a neuromuscular disease passed
on genetically to children by their parents.
* SMA Affects a child's muscular development.
The earlier the symptoms are noticed, the more severe the type of
SMA. Type 1 is the most severe, affecting children while still in
the womb or shortly after birth.
* Type 1 children are usually not able
to hold up their heads, roll over, crawl, sit up without support,
* All muscles are extremely weak, with
the weakest muscles being the legs, upper arms and neck. Also affected
are sucking, swallowing, digestion and breathing.
* Type I is often fatal, with the last
known statistics showing an average lifespan of 8 months, 80% gone
in less than a year and the majority of the rest gone by the age
of 2 unless ventilation or "life support" is provided.
these statistics are no longer a hard and fast rule, and the more
time goes by, the better quality and quantity of life these children
SMA is the Top Genetic Killer of children under the age of 2!
1 in every 40 people carry this gene, but it takes 2 people with
the gene to produce a baby with SMA... and then there is a 1 in
1 in every 6,000 children are born with SMA.
* THERE IS NO CURE, but there is hope. Spinal Muscular Atrophy research
has come very far, to the point of finding a cure in mice. With
your help, a treatment for SMA is within reach for Chase and other
children with SMA. If you would like to donate to research, please
of SMA (FSMA). All donations are tax deducible and go toward
the treatment and cure of SMA. We appreciate your kind consideration.
For more specific information on all the types of SMA and what they
mean, visit SMA
Support Info page or FSMA
* Planet SMA
For Madison & Friends
* Fight SMA
* Paytons Pals
* SMA Angels
* Our SMA
* SMA Australia
* The Muscular Dystrophy
Jennifer Trust for Spinal Muscular Atrophy
* Families of SMA