PHOTOS & VIDEOS


Please pick from the following lists/links below:

 

** PHOTOS **

 

PROFESSIONAL PICTURES:

3 Month Professional Pictures (September 2005)

6 Month Professional Pictures (December 2005)

1 Year Professional Pictures (June 2006)

2 Year Professional Pictures (June 2007)

3 Year Professional Pictures (June 2008)

4 Year Professional Pictures (June 2009)

5 Year PreSchool Graduation Picture (June 2010)

5 Year Professional Pictures (June 2010)

6 Year Professional Pictures (June 2011)

7 Year Professional Pictures (June 2012)

8 Year Professional Pictures (May 2013)

9 Year Professional Pictures (June 2014)

10 Year Professional Pictures (June 2015)

11 Year Professional Pictures (June 2016)

12 Year Professional Pictures (last year with Grandma) (June 2017)

13 Year Professional Pictures (June 2018)

 

 

MISC. PICTURES (by date):

Birth to 2 Weeks (June 2005)

1 Year Birthday Party (June 2006)

First Visit to the Zoo (June 2006)

First Haircut (June 2006)

Chase meets Extreme Makeover: Home Edition Crew... (in town - a Cinti. family w/SMA chosen) (July 2008)

4 Year Birthday Party (June 2009)

Chase's Fundraiser Event (November 2010)

Chase & Friends - Miracle League Baseball (Summer 2011)

Halloween Pictures (2005 to present)

Chase at Play (2005 to present)



** VIDEOS **

 

BEATING THE ODDS
(SMA VIDEOS):

Our Story "Beating the Odds" (May 2007)

Chase's Story - (An Introduction to SMA) (June 2007-updated)

 

 

BIRTHDAY PARTY VIDEOS:

Age 2 - Party at Home with Family (June 2007)

AGE 5 - Party at Parky's Farm (June 2010)

AGE 6 - Party at Parky's Farm (June 2011)

AGE 9 - Party at the Zoo (June 2014)

AGE 10 - Party at the Web Entertainment Center (June 2015)

AGE 11 - Party at Scene 75 - Milford (June 2016)

AGE 12 - Party at Scene 75 - Milford (June 2017)

AGE 13 - Party at The Place Entertainment Center (June 2017)

 

 

CAMP & VACATION VIDEOS:

CAMP FOR COURAGEOUS KIDS (SMA Weekend)

Summer 2007 - 1st VACATION & FSMA CONFERENCE (Chicago)

September 2008 - CAMP VIDEO

April 2010 - CAMP VIDEO

April 2011 - CAMP VIDEO

September 2012 - CAMP & 1st DISNEY WORLD VACATION

September 2014 - CAMP VIDEO

 

 

**SPINRAZA**
FIRST EVER "TREATMENT" FOR SMA
(FDA APPROVED LATE 2016) :

PT Video Comparing Strength - BEFORE SPINRAZA INJECTION (APRIL 2017)
& AFTER 4 LOADING DOSES & 1 MAINTENANCE DOSE (JANUARY 2018)

____________________

Speech Video Comparing Strength - BEFORE SPINRAZA INJECTION (APRIL 2017)
& AFTER 4 LOADING DOSES & 1 MAINTENANCE DOSE (APRIL 2018)

 

 

THERAPY & ACCESSIBILITY VIDEOS:

Aquatic (Using New Adaptive Trach-Safe Float) (June 2012)

Thanks to Bill (May We Help Engineer), Carrie (Aquatic Therapist), & Danmar Company for this awesome float
____________________

Using Moving IPAD Holder (2012)

Thanks to Bill Buttermore - Engineer at "May We Help"
____________________

Using the WREX (Assistive Arm Orthosis) (September 2013)
____________________

OT/PT/Speech (November 2013)

Video made as a thank you to Devon Healthcare
____________________

Music Therapy (August 2014)

Educational, Fun, & A New Favorite for Chase - Mimi Sinclair (Music Therapy Services)
____________________

Adaptive Batting Machine (May 2015)

Thanks to May We Help Engineers & their awesome interns (Thomas Treloar, Lauren Schultz, and Steven Watson), for working to create this amazing project (now being enjoyed by Chase & his friends on the Miracle League Baseball Team).
____________________

Using Angel Arms - Adaptive Arm Sling (September 2015)

Purchased this amazing sling system (and a leg version) thru: www.jaceysjourney.com
____________________

Chase's adpative set-up for the Osmo Gaming System (January 2016)

(a Christmas present that offers fun & interactive movements with the ipad)
____________________

More of Chase & Friends Using Adapted Batting Machines (June 2016)

Thanks to May We Help Engineers
____________________

Chase's Accessible Room (New Construction - Start to Finish) (October 2018)

Video shows planning stages and accessibility options considered
____________________

Wheelchair Bowling Ramp Project (July 2019)

Thanks to Jackie Torok, Pete Delisie, Matt Dovey & Home Depot for building Chase this awesome ramp
____________________

 

 

MISCELLANEOUS VIDEOS
(LISTED BY AGE)

 

2006 VIDEOS (age 1):

My First Driving Experience (September)

Ring Bearer at Aunt Cindy's Wedding (September)

Attending School/Early Intervention Program at Perlman (Fall)

 

2007 VIDEOS (age 2):

Swimming & Loving the Water (May)

FSMA Rollerskating Halloween Party (October)

First Hayride (Field Trip to Shaw Farm) (October)

Blowing Bubbles (November)

Playing organ (Gift from Aunt Cindy) (December)

 

2008 VIDEOS (age 2/3):

More Swimming & Loving the Water (May/June)

Sled Riding in the Snow (December)

 

2009 VIDEOS (age 3/4):

Chase Singing Alphabet Song (April)

 

2010 VIDEOS (age 4/5):

New Talent - Alphabet Backwards (January)

Singing "Jesus Loves Me" (January)

Thanks to Make-a-Wish Foundation, My Dream Came True (May)

"My Sister Sarah" Band Visits & Produces Cool Video (October)

New Talent - Counting Backwards from 100 (November)

 

2015 VIDEOS (age 9/10):

Tracheostomy - A Parent's Perspective (Life Before & After Trach) (April)

FSMA Rollerskating Halloween Party (October)

Chase reads music, plays piano (on ipad) & strums the guitar at his first Christmas Concert, (Hosted & Organized by Music Therapist) (December)

 

2016 VIDEOS (age 10/11):

Sled Riding in the Snow (February)

 

2017 VIDEOS (age 11/12):

Chase reads music, plays piano (on ipad) & strums the guitar at the 2017 Spring Concert, (Hosted & Organized by Music Therapist) (May)

A Special Day at the Red's Game (August)

FSMA Rollerskating Halloween Party (October)

 

 

 
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